Chapter 5: From Severe to Moderate to Mild!

It has been a while since we posted simply because life has just continued on as normal. Emilia wears her head band every day and it is a part of our daily lives. She honestly does not notice when it is on or off. When it is off she loves looking at it, poking her fingers through the little holes at the back and waving it around. Her progress has been fantastic! Initially her head shape was classified as severe with a cephalic index of 99.9% which meant her head was wider than it was longer. It went down to moderate and has now just entered the mild category which is what we are aiming for. We have been for a few scans and you can see the progress quite clearly. Her head has only grown 1mm in width but it has had 10mm growth in length which is perfect as we want length growth over width growth.

I was worried that the head band may slow down her development in regards to crawling with the added weight on her head but it hasn’t! She is almost 8 months now and is SO SO ready to start crawling… we just need to get her crawling forwards as she is a machine at crawling and shuffling backwards!! lol.

You can see from the break down of the results and scan pictures inserted below that Emilia’s face and head shape is becoming more symmetrical. She still has mild plagiocephaly on the left side of her head (it is slightly flatter on one side more than the other) so we still have a few more weeks to go to encourage the left side (Q4 in the scan) to even out with the right side (Q3)

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Here are her measurements and an explanation as to what each of the measurements mean because its all gibberish to me! The numbers in red are from her first scan and the numbers in blue are from her latest scan.

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Cephalic Ratio =Cranial Breadth / Cranial Length. An ideal ratio would be anywhere between 78% and 85%.

  • Radial Symmetry Index (RSI)= From the front of the head, 15° segments are measured and added. The addition of the right side segments is substracted to the addition of the left side segments. An ideal ratio would be left side – right side = 0
  • Oblique at 30 deg (US1 and US2) = Length of diagonal taken at 30° on each side (30° corresponds to the corner of the eye). The substraction of US1 and US2 gives an indication of the assymetry of the head.
  • Cranial Vault Asymmetry An assymetry bet. 0 and 10 mm is classified as mild, bet 10 and 16 mm medium and over 16mm severe.
  • Q1, Q2, Q3, Q4 volumes: Draws vertical and horizontal lines centered on middle point of head. Measures volume of each corner starting front left, then front right, back right and back left.
  • Anterior Symmetry Ratio: looks at front of head and divides front left volume with front right volume. An ideal ratio would be 1
  • Posterior Symmetry Ratio: looks at back of head and divides back right volume with back left volume. An ideal ration would be 1
  • Overall Symmetry Ratio: Divides left side with right side. An ideal ratio would be 1
  • Upper facial left and upper facial right: Measures the length between the centre of the front to each left and right ear. This corresponds to a cranial bone and determines the position of the ear.

We have our next appointment in 3 weeks time and we are hoping it is the last appointment. Ideally we would like her Cephalic Ratio to be anywhere between 89% and 91% so our fingers are crossed that we get closer to those numbers. If we do, it is goodbye head band and hello head kisses!

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Chapter 4: Support, Stares and BIG Changes

When I shared our blog last week I was very nervous about peoples comments and reactions.  There have been a few stares while out and about (more on that in a bit) but I thought that if our blog had just a few views and if one of those views might help just one family or even educate someone about why children sometimes wear head bands then it would totally be worth it… but oh my goodness! The support from our family and friends was so overwhelmingly positive. THANK YOU. There were over 2500 views on our blog! We had some private messages from parents who were worried about their babies heads but did not know where to start and that this blog helped them take action. Sharing it was the right thing to do so thank you all for being supportive, non judgemental and loving.

Stares…

I am actually so used to seeing Emilia in her head band that I forget its on. It’s part of her cute face, chatty nature, cheeky smile and bubbly laugh. I only seem to remember it is on her when I am out and I can’t work out why someone is staring and pointing. It takes me a few seconds…Is there spilt milk down my top?! Baby food in my hair?! And then I remember, Ahhhh right… you are looking at Emilia’s head band.

On our first trip out there was a table of four behind us who could not stop turning around and looking, each taking their turn to look and comment as to why they thought she had a head band. I wish, looking back, that I had approached them and told them why she had it as they were VERY obvious about it all. A while later we were in another shop (buying even MORE clothes for Emilia – not that she needs any more) and the shop assistant approached us to ask us where he could buy one for his 1 year old who had just started walking so he could protect his head! I thought that was quite funny and sweet. I explained to him why she had one on but I was sure he could find a kiddie bicycle helmet for his little boy to wear if he was worried about him bumping his head.

On the flip side I have had some very supportive strangers come up to me and say “Ah my grandson had a helmet. He had great progress. How is she coping?” and other really lovely stories from strangers about friends or family members whose children have gone through a similar thing and had great results. More often than not we get comments on how cute she looks and she just gives people one of her big smiles and their hearts melt.

BIG CHANGES…

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Oh.My.Goodness… Look at this progress! This is in just 2 and a half weeks. We tried a month of side sleeping and had very very little progress. Fast forward 2 and a half weeks with her head band on and there is SUCH a significant change. Her head is rounding out beautifully. Her doctor said he thinks that instead of the full 3- 4 months she will only need another 6 – 8 weeks with the progress she has already made.

We are just delighted! She has embraced her head band so well. We have another scan in 2 weeks time to compare the growth of her skull from her first original scan. Once we have these I will share them.

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Anyway, we are off to the beach for a day of sunshine, sand and sea and that means a day of no head band! Have a happy day 🙂